People with rare diseases have unique patient journeys and require specialized care which is often difficult to access. Challenges to receiving diagnoses and barriers to care are some of the issues those in the rare disease community face.
People with rare diseases report significant delays in receiving diagnoses for their conditions, some even reporting waiting as long as seven years before finally getting an accurate diagnosis.
Due to the rarity of these diseases, physicians often mistake the symptoms for other, more common conditions. Those seeking specialists often must wait for availability and even travel to other parts of the country to see doctors who have experience with their conditions.
Many rare diseases require more research to develop treatments. Only 5% or fewer of rare diseases are said to have at least one approved treatment. For those who have a condition with treatments available, they must overcome access barriers like costs, receiving pre-approval from insurance and getting referrals for specialists who can prescribe them.
Value of Terebellum
Terebellum utilizes a patient-first approach to enable innovative solutions serving the entire specialty pharmacy industry including life sciences manufacturers, providers and patients with orphan and rare diseases.
The Terebellum team dedicated to our branded programmes ensures continuity of care through clinical interventions delivered at key points in the patient journey to avoid lapses in therapy and improve quality of life for these patients. Care coordinators provide exceptional support to caregivers, healthcare providers and biopharma partners, with experienced specialty Rx pharmacists available 24/7 to play a critical role in helping to manage the clinical and non-clinical issues associated with rare diseases.
Finally, Terebellum’s unique financial pharmaceutical services, include first-in-class, pay-over-time financial models to offset the costs of expensive cell/gene therapies and provide access to these curative therapies.
Be sure to support the rare disease community on February 28th and throughout the year. Visit https://www.terebellumltd.com for more information on how Terebellum can create a customised programme for enhanced medication access, clinical outcomes and optimal cost savings.